|Dataset full name:
||Burn Injury Model Systems
||The BMS data are collected through the four Burn Injury Rehabilitation Model Systems centers (BIMSC). The BIMSC are customized programs for severe burns for all age groups within different regions. The programs support research and multidisciplinary care and rehabilitation services for individuals with severe burns. Each center is involved in the collection of data, and conducts specific research with the goal of improving long-term functional, psychosocial, and quality-of-life outcomes with the objective to improve survival rate, retain normal physical function and promote psychosocial adaptation for individuals with severe burns. BMS includes data on children and measures including children’s health-related quality of life (HRQOL). The Burn Model Systems Data Coordinating Center (DCC) supports and directs the collection, management and analysis of the BMS center data. The BMS project is funded by the National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education.
||Burn, NIDDR, Model System, Rehabilitation, Outcomes
||Clinical & Survey
||National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services, U.S. Department of Education
||Health conditions/Disability measures
||All (related to Burn injury) including: Skin problems, Scaring, Burn coverage, Skin grafts, Inhalation injury
||Physical Component Summary Measure (PCS), Hand and foot functioning, Mental Component Summary Measure (MCS) Range of motion deficits, Amputation, Scarring, Functional Limitations, Pain, Inhalation injury
||Measures/outcomes of interest
||Demographics: Age, Gender, Race, Marital status, Education, Zip code, Living setting, Employment
Pre- burn information: Pre-injury information, Injury risk factors in the patient’s family environment
Cause of Burn & Severity of Burn: Burn demographics, Parts of body burned, Burn injury characteristics, Burn complications, Respiratory problems
Treatments: Graft information, Pressure garment information, Physical therapy & occupational therapy intervention (range of motion, amputation, heterotopic information, scar information)
Hospital information: Re-hospitalizations, Length of stay, Total number of inpatient rehabilitation days, Discharge location, Payer status, Treatment costs
Outcomes: Distress level, Satisfaction with appearance scale, Scar information, Longitudinal psychological & physical functional assessment, Vocational and school assessment follow-up Follow-up data: Satisfaction, Participation, Employment, Substance and alcohol abuse, community integration
||Individuals with severe burns and related conditions treated at one of the four Burn Model System (BMS) Centers.
|| 2011: 4,907 enrolled and consented for follow up.
2007: at the time of discharge: 3,255, after 6 months of followup: 2,054, after 1 year : 1,741, and after 2 years of followup: 1,347
|Unit of Observation
||From current 4 BIMSC: Johns Hopkins University Burn Injury Rehabilitation Model System, Baltimore, MD
North Texas Burn Rehabilitation Model System, Dallas, TX
University of Texas Medical Branch, Galveston, TX
University of Washington Burn Injury Rehabilitation Model System, Seattle, WA
|Data Collection Mode
||Initial intake: in person interview.
||1994 to present
|Data Collection Frequency
||Collected at the time of hospitalization or discharge, than 6, 12, and 24 months post burn injury.
There is also a separate collaborative study designed to collect long term followup data at 5 and 10 years post burn injury.
||Strengths and limitations
||Comprehensive and longitudinal data of burn survivors with severe injuries, detailed information on injury, intervention, outcomes, disability, distress and community reintegration, geographic and patient diversity including large pediatric population. Includes pre- (retrospective) and post- burn information regarding life satisfaction and activity participation. Database includes measures of cardiopulmonary function, physical growth and maturation, bone density, range of motion, activities of daily living, biomarkers , as well as psychosocial adjustment measuring life satisfaction and satisfaction with appearance. Data includes both adult and pediatric cases (age at burn <16). There is also a long term (5 and 10 year) followup study that includes the World Health Organization Disability Assessment Scale that collects information on difficulties due to health conditions.
Financial assessment data is also collected regarding rehabilitation, professional and hospital charges for various burn care and injury rehabilitation strategies.
||Data is not population based, only includes model system patients, survey data may have recall, and selection bias. Lack of follow-up data from less severely burned patients. Site or patient specific treatment/intervention information details may not be included in the BMS database. Variation in data collection may exist between different centers especially with regards to followup.
Other burn data bases include the National Burn Repository (for US and Canada) and American Burn association patient registry.
|Data Access Requirements
||Data Use Agreement, No Cost
||BMS data directory:
|Dataset components (where applicable)
||Model Systems Knowledge Translation Center BMS publication list:
Matthew K, et al. The National Institute on Disability and Rehabilitation Research Burn Model System Database: A Tool for the Multicenter Study of the Outcome of Burn Injury. Journal of Burn Care & Research. 2007, 28(1) 84-96.
Lezotte DC, Hills RA, Heltshe SL, Holavanahalli RK, Fauerbach JA, Blakeney P, Klein MB, Engrav LH. Assets and liabilities of the Burn Model System data model: a comparison with the National Burn Registry Archives of Physical Medicine and Rehabilitation 88, Issue 12, Supplement 2, 2007.