Rehabilitation Dataset Directory: Repository Profile

Autism spectrum disorders, Mental health, Autism

The National Institute of Mental Health Data Archive (NDA) is a single infrastructure that was created through the integration of a set of research data repositories including the National Database for Autism Research (NDAR), the Research Domain Criteria Database (RDoCdb), the National Database for Clinical Trials related to Mental Illness (NDCT), and the NIH Pediatric MRI Repository (PedsMRI). 

The NDA integrates several other data repositories in addition to NIMH data archive, all combined and harmonized in one database for broad querying. Repositories currently supported include: NIMH Data Archive, Adolescent Brain Cognitive Development Study (ABCD) Data Repository, Connectome Coordination Facility (CCF), The Osteoarthritis Initiative (OAI), and the National Institute on Alcohol Abuse and Alcoholism Data Archive (NIAAADA) 

The NDA makes available human subjects data collected from hundreds of research projects across many scientific domains. 

The NDA is an informatics system and research data repository that provides the infrastructure to store, search across, and analyze various types of data. In addition, the NDA provides longitudinal storage of a research participant's information generated by one or more research studies thereby associating a single research participant's genomic, imaging, clinical assessment, and other information, even if the data were collected at different locations or through different studies. This allows researchers access to more data, making it easier and faster to gather, evaluate, and share research information from a variety of sources.

The NDA infrastructure provides for sharing research data, tools, methods, and analyses enabling collaborative science and discovery. De-identified human subjects data, harmonized to a common standard, are available to qualified researchers.  

Mental health, Autism, Neuroimaging, Alcohol abuse and alcoholism

National Institutes of Health (NIH)

National Institute of Mental Health 

Clinical data, Phenotypic data, Imaging data, Neurosignal recordings data, Genomic/pedigree data, Survey data

International

International

NDA requires all data to be successfully validated prior to submission. It provides access to several tools to simplify data exploration and identification including the NDA Data Dictionary (see description below)

https://nda.nih.gov

Data Dictionary: contains thousands of clinical assessments used by mental health researchers to collect data for clinical research studies.  Many assessments are utilized across different research studies, facilitating harmonization, reproducibility, and secondary data use. Within each definition are the included data elements, value ranges, descriptions, etc.

GUID Tool:  Uses personally information provided by research participants to securely create a unique identifier. This tool allows the linking of participant data across studies and laboratories while maintaining the participant's privacy.

Data contribution:

https://nda.nih.gov/contribute/contribute-data.html 

Data access:

https://nda.nih.gov/get/access-data.html  

Data Use agreement, No cost

Webinars:

https://nda.nih.gov/webinars-and-tutorials#webinars 

Tutorials:

https://nda.nih.gov/webinars-and-tutorials#tutorials