Rehabilitation Dataset Directory: Repository Profile

Repository: National Institute of Child Health and Human Development Data and Specimen Hub (NICHD DASH)

Basic Information
Repository Full Name	National Institute of Child Health and Human Development Data and Specimen Hub
Repository Acronym	NICHD DASH
General Theme or Special Population	Children/Youth
Summary	NICHD DASH is a centralized resource for researchers to store and access de-identified data from NICHD-funded research studies for secondary research use. It is a mechanism for NICHD-funded investigators to share research data from studies in accordance with NIH Data Sharing Policies. Many of the NICHD-funded research studies also collected biospecimens that are stored in the NICHD Contracted Biorepository. To provide access to these biospecimens, NICHD DASH stores and make available to other investigators the biospecimen catalog for studies that have associated research data in NICHD DASH. By supporting data and biospecimen access through NICHD DASH, NICHD aims to accelerate scientific findings and improve human health.
Key Terms	Children/Youth, Child health, Child development, Environmental factors
Sponsoring Agency/Entity	National Institutes of Health (NIH) National Institute of Child Health and Human Development (NICHD)
Datasets Information
Data Type(s)	Survey, Biomarkers, Environmental exposure measures
Continent(s)	International
Countries	International
Strengths and Limitations
Strengths	Well designed, easy to navigate, and informative repository with clear tutorials regarding use. No account required to browse or search for study data stored in NICHD DASH; however, an account is required to submit or request study data and download study documentation. A wide variety of biospecimens collected in a number of the repository studies can be requested. Interface provides consistent information across studies regarding design and study population (sex, life stage, ethnicity, race, location).
Limitations	Limited to only NICHD-funded research studies.
Data Repository Details
Primary Website	https://dash.nichd.nih.gov/
Repository Tools	DASH Tutorial Provides detailed instructions on all aspects of DASH. Data Explorer allows filtering by: Topic Study Type Research Networks and Initiatives Subjects by Sex Subjects by Life Stage Subjects by Ethnicity Subjects by Race Subjects by Location Biospecimen Explorer allows filtering by: Search by Subject ID Search by Sample ID Type Biological Macromolecule Donor Sex Donor Race Donor Ethnicity Preservation Type Use Restrictions Based on Consent Documentation Explorer allows filtering by: Study Name Topic Study Type Research Networks and Initiatives
Data Submission Requirements	Limited to only NICHD-funded research studies. An account (free registration) is required to submit study data.
Data Submission Process	https://dash.nichd.nih.gov/resource/submission
Data Access	Free account registration is required to request study data and download study documentation.
Data Access Requirements	Data Use agreement, No cost
Documentation & Resources
Technical	DASH Tutorial: https://dash.nichd.nih.gov/resource/tutorial
Other Papers	DASH, the data and specimen hub of the National Institute of Child Health and Human Development https://www.nature.com/articles/sdata201846